The 10th International Conference of the International Lymphoedema Framework will take place in Copenhagen, Denmark, from May 6-8, 2021 (new dates due to COVID-19). Pernille Henriksen, ePAG Co-Chair for PPL WG, will be present at this event and will give a presentation entitled Infections; the experiences, the fear and the…
Blog Archives
The 7th ERN IT Advisory Group Meeting will take place online on Tuesday March 31st, 2020. Ibrahim Donmez, our IT Helpdesk & End User Support Specialist, will be present at this event.
The VASCERN HHT-WG Monthly Meeting #36 will take place on March 20th, 2020 at 8 am (Paris time).
The VASCERN HHT-WG Monthly Meeting #35 will take place on February 28th, 2020 at 8 am (Paris time).
The European Joint Programme on Rare Diseases (EJP RD) Research Training Workshops call aims to identify the most suitable topics for the organization of research training workshops with a cross-ERN added value. Financing covers the organization of a 2 days workshop (e.g. venue, catering & travel and accommodation of speakers…
The European Joint Programme on Rare Diseases (EJP RD) Research Mobility Fellowship call aims to financially support young investigators to undertake short scientific visits (secondments) fostering specialist research training outside their countries of residence and within one of the ERN host institutions. The research mobility fellowships cover stays of 2…
The first meeting of the Knowledge Generation Working Group of 2020 will be held on February 20th, 2020 at 11 am.
The 29th EURORDIS Round Table of Companies Workshop will take place on February 19th, 2020 in Brussels, Belgium. It will be a full-day workshop dedicated to the topic of medicines’ repurposing. To register and for more information on this event, click here
The EURORDIS Black Pearl Awards will take place in Brussels, Belgium on February 18th, 2020. This annual event recognises the outstanding achievements and exceptional work of people making a difference for the rare disease community, such as Claudia Crocione, our European Patient Advocacy Group (ePAG) Co-Chair for Hereditary hemorrhagic telangiectasia (HHT), who will be…
World Lymphedema Day 2020 will take place on March 6th, 2020. This annual advocate-driven celebration aims to raise awaresness for all types of lymphatic diseases, primary and secondary lymphedema, lipedema, lymphatic filariasis, lymphatic malformations, and the full lymphatic continuum of diseases impacted by the lymphatic system. In preparation of this…


