EU Call – Rare Disease Registries

Aim: increase knowledge on rare diseases and develop clinical research

Eligibility: only applicants members of approved ERNs are eligible to be co-funded.

Scope: from at least 3 countries
Description: The activities to be carried out concern the creation of 3-4 new registries on rare diseases. These registries should constitute key instruments to increase knowledge on rare diseases and develop clinical research. Collaborative efforts to establish data collection and maintain them will be considered, provided that these resources are open and accessible. Registries should be built with the support and according to the standards set up by the European Platform on rare diseases registration and provide all necessary data to the Platform (taking the relevant data protection rules into account).

Call text: here


Budget: EUR 1.200.000 (indicative budgetary ceiling per grant to be awarded in 2017 is EUR 400.000, for 3 to 4 registries)

Deadline: March, 21st

All information: here

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