The VASCERN Ethics-WG first virtual meeting will take place on June 14th.
Blog Archives
In the framework of the Cure HTT 12th International Scientific Conference held in Dubrovnik, Croatia on June 8-11th, our VASCERN HHT-WG Members will have a first VASCERN HHT-WG face-to-face meeting.
This workshop is organised by the French Ministry of Research.
On June 20th & 21th, there will be a Joint meeting of the ERN Board of Member States (BoMS) and the ERN Coordinator’s Group (ECG). Issues such as: call for new ERN members joining existing networks, affiliated partners, monitoring of ERNs and relationships between ERNs and Industry will be tackled.…
VASCERN will be represented at this workshop. “ERNs need to be able to demonstrate their impact across a broad range of fields and activities, which requires carefully-selected indicators and at the same time a monitoring system including Key Performance Indicators should be set up to follow up the activity and…
he VASCERN 1st annual seminar will take place in Paris on October 13-14th! This event will gather 80 participants, including all our Members for the first time! @VASCERN Follow & tweet with us using #VASCERNdays2017 All our 31 Healthcare Providers Members will be represented by 1 or 2 representatives. 12 Patient Organisations, Members of our…
Info and registration here
Meeting organised by EURORDIS with the Patient Group (ePAG) on the development of the ePAG and EURORDIS support
The eHealth WG, Chaired by Dr Alessandro Pini, Representative of our Member Centro Malattie Rare – Marfan Clinic, Milan, Italy, will have its first monthly virtual meeting on May, 2nd. The agenda includes the development of our VASCERN Mobile Application for cross-border healthcare. This Mobile Application (for IOS and Android…