The ERN Research Training Workshops funding opportunity is now open for applications until April 25th. The goal of the workshops is to train researchers and clinicians affiliated to ERN- Full Members or – Affiliated Partners in relevant topics on research in rare diseases. Training themes may include innovative research methodologies, diagnostic research topics, interdisciplinary treatment approaches, such as gene therapy and transplantation,…
Blog Archives
In the context of EJP RD’s ERN Workshops, a face-to-face workshop on “Translational research on bone impairment in rare diseases” aimed at giving an update on translational research on bone impairment in rare diseases and bringing together experts and trainees to facilitate collaborations is being organised by Justine Bacchetta of the Faculty of Medicine of Lyon.…
As part of the training activities proposed by EJP RD, an international course entitled “Training for patient representatives and advocates on leadership and communication skills” is a 2-day training programme organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP-RD task partners, open to patient representatives involved in the 24 European Reference Networks (ERNs), including members of the European…
The VASCERN VASCA-WG Monthly Meeting will take place on March 16 th , 2022 at 4:00 pm (Paris time)
VASCERN will hold a webinar on Wednesday March 30th, 2022 from 5:30pm to 6:30pm (CET) entitled: HHT and nosebleeds. Presenters include members of the Hereditary Haemorrhagic Telangiectasia Working Group (HHT-WG):Professor Anette Kjeldsen, Dr. Freya Droege, Dr. Ruben Hermann, Professor Urban Geisthoff, Claudia Crocione (ePAG Co-Chair for HHT) and Christina Grabowski (ePAG Deputy…
As part of the training activities proposed by EJP RD, the International Summer School on Rare Disease Registries and FAIRification of Data is a 5-day training programme organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP-RD task partners, aimed at the international research community, clinicians, medical specialists, registry curators, database managers, healthcare professionals and…
The VASCERN ePAG Monthly Meeting will take place on March 8th, 2022 from 10 am to 11:30 am (Paris time).
The VASCERN HHT-WG Monthly Meeting will take place on March 25th 2022 at 8.00 AM (Paris time).
The VASCERN NEUROVASC-WG Monthly Meeting will take place on March 10th, 2022 at 5.30 pm (Paris time)
The VASCERN PPL-WG Monthly Meeting will take place on March 21st, 2021 at 5:30 pm (Paris time).