11th International Lymphoedema Framework Conference

Save the date! We are pleased to announce that the 11th International Lymphoedema Framework Conference will take place on 13 – 15 June 2023 in Nottingham, UK. The venue is the East Midlands Conference Centre, University of Nottingham. The conference is organised in collaboration with the Welsh framework, Lymphoedema Wales. An…

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Innovation Bootcamp in Rare Diseases 2022

It is a great pleasure to invite you to the third edition of the Innovation Bootcamp in Rare Diseases (IBRD2022) congress in Brussels, which will be held on October 11th, 2022. The target audience of this event includes all professionals involved in the prevention, treatment and diagnosis of rare diseases…

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2023 EU4Health Stakeholders’ Event

EU4Health Programme has been adopted in March 2021 with EUR 5.3 billion during 2021-27, an unprecedented level of financial commitment for a Union investment in health. Each year a targeted consultation is launched to seek opinion of stakeholders about current and future EU health priorities and strategic orientations and on…

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Joint Rare Diseases Workshop

We are happy to invite you to take part in a workshop addressing “Ethics and regulatory considerations for ERN Data Access Committee members”. This workshop is jointly organised by ERICA and EJP RD and will take place online on 30th June from 10 am to 12:30 pm. It primarily aims to train the members…

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Paediatric Expert Patients Training Workshop

Are you an adolescent aged from 12 to 18 interested in the themes of health, biomedical research, healthcare, and children rights? Are you a patient with a chronic rare disease interested in getting the skills to contribute in developing and shaping research making it more suitable for children? If yes,…

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