VASCERN Spotlights: Professor Claire Shovlin

VASCERN Spotlights: Professor Claire Shovlin I hope that across the diseases that VASCERN champions, the wisdom, dedication and experience of the medical doctors can be channeled into further, genuine healthcare improvements for patients and their families. It is with great pleasure that we present this month’s member in the VASCERN…

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VASCERN Spotlights: Professor Julie De Backer

VASCERN Spotlights: Professor Julie De Backer The ultimate goal is to provide patients with these rare diseases with the right care in a timely manner – my greatest hope, therefore, is that the central ERN message “Share – Care – Cure” will become “Excellent Sharing – Excellent Caring – Excellent…

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VASCERN Spotlights: Dr Leema Robert

VASCERN Spotlights: Dr Leema Robert What really interested me about the VASCERN network was that it was not just about the diagnosis but also the management of these patients.   To end Ehlers-Danlos Syndrome (EDS) awareness month on a high note, we have the pleasure to present this month’s member…

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VASCERN Spotlights: Juergen Grunert

VASCERN Spotlights: Juergen Grunert This month it’s Juergen Grunert, the European Patient Advocacy Group (ePAG) Co-Chair for our Medium-Sized Arteries Working Group (MSA-WG), who is in the VASCERN Spotlight! Read about his most memorable moment as an ePAG representative so far and his hopes for VASCERN and for the ERNs…

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VASCERN Spotlights: Professor Miikka Vikkula

VASCERN Spotlights: Professor Miikka Vikkula This month we interview the Chair of the Vascular Anomalies Working Group (VASCA WG), Professor Miikka Vikkula, a human geneticist from Brussels, Belgium. Prof Vikkula talks about the challenges of working in the rare disease field and the amazing progress that has been made to…

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VASCERN Spotlights: Professor Guillaume Jondeau

       VASCERN Spotlights: Professor Guillaume Jondeau This month we interview VASCERN Coordinator, Professor Guillaume Jondeau, a cardiologist from Paris, France. Prof Jondeau took the time to answer our questions about how he became the Coordinator of VASCERN, his expertise in Marfan syndrome and related diseases, and his hopes for our…

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VASCERN Spotlights: Natascha Assies

VASCERN Spotlights: Natascha Assies Welcome to a new monthly article segment entitled VASCERN Spotlights! Each month we will introduce one of the passionate and hard-working members of our network through a series of questions and answers. Our first VASCERN spotlight features the lovely Natascha Assies, from the Netherlands, who is…

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