Research News: HHT new scientific publication

We are proud to report that a new publication by our HHT-WG Chair Prof Claire Shovlin, the British Thoracic Society Clinical Statement on Pulmonary Arteriovenous Malformations, is now available. Pulmonary arteriovenous malformations (PAVMs) are abnormal blood vessels that connect pulmonary arteries directly to pulmonary veins, creating an anatomic right-to-left shunt,…

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Research News: New HHT-WG Publication

A new scientific publication by Dr Sophie Dupuis-Girod, HHT-WG Co-chair and Dr Claire Shovlin, HHT-WG Chair, has been published: The Lung in Hereditary Hemorrhagic Telangiectasia by Sophie Dupuis-Girod, Vincent Cottin, C.L. Shovlin Respiration 2017;94:315-330 (DOI:10.1159/000479632) has been chosen to be the free access article (Editor’s Choice) of Vol. 94, No.…

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Research News: VASCA-WG new scientific publication

A novel blood vessel disorder and its genetic cause discovered Researchers in the group of Prof M. Vikkula of the de Duve Institute in close collaboration with the Vascular Anomalies Center (Prof Laurence Boon) and the Center for Human Genetics (Dr Nicole Revencu), both at Cliniques universitaires Saint-Luc, discovered a…

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Research News: PPL-WG New Publications

New collaborative publications have been published these last months by the Chairs of VASCERN Pediatric and Primary Lymphedema Working Group, Dr. Robert Damstra and Prof. Sahar Mansour and her HCP substitute representative, Prof Peter Mortiner: Circumferential suction-assisted lipectomy in the treatment of primary and secondary end-stage lymphoedema of the leg. Lamprou…

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Research News: HTAD-WG New Publication

A new HTAD-WG collaborative research paper has been published by Prof Guillaume Jondeau and CRMR Marfan team members (Dr Olivier Milleron, Maud Langeois, Myrtille Spentchian, Prof Catherine Boileau) as well as HTAD-WG and HHT-WG Members (Prof Julie de Backer, Prof Yskert Von Kodolitsch, Dr Sophie Dupuis-Girod) and Centers cooperating with the network (Prof…

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Research News: VASCA-WG Members New Publication

The paper on the identification of the cause of BRBN syndrome was published in the January issue of Journal of Investigative Dermatology. This collaborative research paper has been written by VASCern VASCA-WG Chair, Prof Miikka Vikkula, Prof Laurence Boon and their team members Julie Soblet, Antonella Mendola, Raphaël Helaers, Melanie Uebelhoer, HCP…

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Research News: HHT Member new publication

A new collaborative research publication has been published in the JAMA by Dr. Sophie Dupuis-Girod, Co-chair of the VASCern HHT-WG and HCP Representative of the French HHT Reference Center, Hospices Civils de Lyon: Effect of Bevacizumab Nasal Spray on Epistaxis Duration in Hereditary Hemorrhagic Telangectasia:  A Randomized Clinical Trial | Sep…

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