Board of Member States MoM

The European Commission has just published the Board of Member States Minutes of Meeting, which was held on March. Issues such as the importance of avoiding fragmentation, relations between ERNs and the Industry, ERN IT Platform, Affiliated Partners, endorsement of HCPs, were tackled.

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Rare Diseases & ERNs in H2020 2018-2020

The Advisory Expert Group to the European Commission (DG Research and Innovation) on H2020, Societal Challenge 1 “Health, Demographic Change and Well-being” has released its report on the Horizon 2020 programme priorities for funding in 2018-2020. Research in Rare Diseases is named as a priority by the Expert Group (report, pp.…

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ESOF 2016

The EuroScience Open Forum 2016 took place in Manchester, UK, between July, 23-27th. The European Commissionner for Research, Science and Innovation, Carlos Moedas delivered a speech on “Europe’s voyage towards an open global research area“. He underlined that “Rather than being an elite activity, concentrated in a few countries in Europe,…

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ERN Assessment Indicative Timeline

24 ERN Project Proposals, including VASCern, have been submitted to the European Commission, DG Health in June (call with the FPA Funding) and July (without Funding). The Assessment process should run until December, 2016. The technical assessment by the Independant Assessment Body (IAB) should take place until November 2016 (including…

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Research Integrity in H2020

New provisions in the Horizon 2020 (European Union Programme for Research and Innovation) Model Grant Agreement bring about reinforced rules regarding Research Integrity. Article 34 of the MGA calls for beneficiaries to respect “the principles of honesty, reliability, objectivity, impartiality, open communication, duty of care, and fairness and responsibility for future science…

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ERC Work Programme and Record budget 2017

“The European Research Council (ERC) announces its 2017 grant competitions with a total budget of around €1.8 billion, the highest ever since the ERC’s inception in 2007. It is also the record ERC annual funding reserved for young researchers with two to seven years of post-PhD experience (Starting grants).”. Besides, the…

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eHealth Network

The eHealth Network held its 9th meeting in Amsterdam on June, 7th. On the agenda: implementation of the eHealth Digital Service Infrastructure (eHDSI), identification for the exchange of personal health data, legal aspects of cross-border exchange of health data, implementation of the digital single market strategy, standardisation and interoperability, mobile…

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The EU invests in Health

The European Commission has released a factsheet on the European Fund for Strategic Investments (EFSI) role with regard to the Health sector. “EFSI, cornerstone of the Investment Plan, can support investment in innovative health solutions, new effective medicines and social infrastructures. By investing in medical infrastructure, services and research, EFSI is contributing to the EU’s…

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Disability and Rare Diseases

ORPHANET and the French National Solidarity Fund for Autonomy (CNSA) have developed a new thesaurus services on ORPHANET on Rare Diseases’ Disability. Rare Diseases will be progressively described in this thesaurus using the terms adapted from the international classification on Disability. This service is available in 7 EU languages (French, English,…

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