VASCERN 1st Year Deliverables Submitted!

VASCERN is a European Reference Network, an EU Project co-funded by the European Union 3rd Health Programme. Under the 5 year Framework Partnership Agreement (FPA) with the European Commission, VASCERN has signed a Specific Grant Agreement (SGA) for its first year of activities as an official ERN. As February is our Month…

Continue reading

VASCERN selected for EU eHealth Funding

VASCERN (as well as other European Reference Networks for rare diseases) has answer to the Connecting Europe Facility Telecom Call 2017 on eHealth for ERNs last September. VASCERN’s proposal as well as other ERNs proposals have been selected for Funding! Next steps are the Preparation and signature of the grant agreements by June…

Continue reading

VASCERN at the Rare Disease Village!

The 11th edition of Rare Disease Day 2018 takes place on February 28th, 2018 and to mark this International day of raising awareness for rare diseases, VASCERN will be attending the “Rare Disease Village”, organized by the French Rare Disease Networks (Filières de Santé Maladies Rares), at La Canopée des…

Continue reading

Editorial on the European Reference Networks in OrphaNews

The latest edition of OrphaNews features an editorial dedicated to the European ReferenceNetworks (ERNs), highlighting their first year of achievements and the challenges they still face ahead. Many topics are covered including the successful launch and implementation of the Clinical Patient Management System (the virtual consultation tool), data integration and interoperability in ERN registries, the Governance structures of the…

Continue reading

VASCERNdays2017: Read Our Full Report Now!

We are pleased to announce that the full report from VASCERN’s First Annual Seminar (#VASCERNdays2017) is now available! This comprehensive report details the two day seminar that took place in Paris, France on October 13-14, 2017 and that was attended by over 80 participants from all across Europe (Read our…

Continue reading

Research News: New HTAD Scientific Publication

A new publication, co-authored by Prof Alessandro Pini (VASCERN eHealth and Training & Education Chair and HTAD-WG and MSA-WG member), entitled “Impaired Central Pulsatile Hemodynamics in Children and Adolescents With Marfan Syndrome” is now available. This study focuses on a cohort of children and adolescents with Marfan syndrome (MFS), a rare vascular…

Continue reading