CPMS virtual meetings this month

This month, members of the Vascular Anomalies Working Group (VASCA WG) held a virtual meeting using the Clinical Patient Management System (CPMS) in order to discuss two new patients cases. They used the CPMS’s videoconferencing tool in order to schedule a dedicated meeting where two Dutch patients were discussed. The…

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VASCERN Spotlights: Andrea Diociaiuti

In this edition of VASCERN Spotlights we interview Dr. Andrea Diociaiuti, a dermatologist from Italy and member of the Vascular Anomalies Working Group (VASCA WG). Dr. Diociaiuti shares what attracted him to the specialization of dermatology and vascular anomaly management, the challenges of working in the rare disease field and…

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New Position Paper from the Hereditary Haemorrhagic Telangiectasia Working Group on Cerebral Screening in Adults and Children with HHT

A new position paper by the Hereditary Haemorrhagic Telangiectasia working group (HHT WG), entitled European Reference Network for Rare Vascular Diseases (VASCERN) position statement on cerebral screening in adults and children with hereditary haemorrhagic telangiectasia (HHT), has recently been published in the Orphanet Journal of Rare Diseases. Abstract: “Hereditary haemorrhagic…

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Capillary, Venous and Lymphatic Malformation Patient Pathways now available!

Three new patient pathways have just been released by the Vascular Anomalies Working Group (VASCA-WG) and are now available online! Capillary Malformation Patient Pathway Venous Malformation Patient Pathway Lymphatic Malformation These pathways (along with the already published pathway on Severe/Rare Infantile Hemangioma) were first presented at the International Society for the Study…

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