VASCERN Spotlights: Christina Grabowski

This month we talk to Christina Grabowski, European Patient Advocacy Group (ePAG) Deputy Co-Chair of the Hereditary Haemorrhagic Telangiectasia (HHT) Working Group (HHT WG), from Germany.  Christina represents the German HHT Patient Organisation – Morbus Osler Selbsthilfe e. V and gives us her thoughts on the role of a patient…

Continue reading

New VASCERN Registries Project Poster

The VASCERN Registries Project launched on May 1st, 2020 after our proposal was selected to receive funding from the Health Programme of the European Union under the call for proposals HP-PJ-2019 on Rare Disease registries for the European Reference Networks. The Grant Agreement was finalised in April and the project…

Continue reading