Recording of webinar on Pregnancy and Primary Lymphedema

A webinar video has just been released on the VASCERN Youtube channel titled Lymphedema and Pregnancy. This video, created by Filière FAVA-Multi (French rare diseases Healthcare Network), is an informative webinar on Pregnancy and Primary Lymphedema presented by Dr. Stéphane VIGNES (Hôpital Cognacq-Jay). The video is in French but the subtitles have been translated…

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ERICA Collaborative inter-ERN Research Wall

ERICA Collaborative inter-ERN Research Wall: Research Wall | ERICA (erica-rd.eu) ERICA aims to promote collaborative inter- ERNs research projects. It is therefore crucial to have a centralised location to announce any new project and search for collaborators. A specific web page has been created for this purpose on the ERICA…

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Recording of the VASCERN webinar: HHT and Nosebleeds

The VASCERN webinar HHT and Nosebleeds took place on on Wednesday 30th March This informative webinar on HHT and nosebleeds was presented by Prof Anette KJELDSEN (HHT Center Odense University Hospital ), Prof Urban GEISTHOFF (Universitätsklinikum Gießen und Marburg), Dr Freya DROEGE (Essen University Hospital ), Dr Ruben HERMANN (CHU de Lyon HCL),…

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Explore the Rare Diseases Clinical Trials Toolbox

Drug development programmes in rare diseases have many challenges, some of which differ from those facing researchers working on common diseases, like the lack of clinical research experts and the scarcity of patients. Moreover, academic sponsors and investigators end up getting involved not only in the scientific aspects of the…

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Rare Disease Day 2022 at VASCERN

Rare Disease Day took place this year on February 28th, 2022 and VASCERN was happy to participate in this annual event that celebrates the rare disease community and aims to raise awareness, while highlighting the importance of attaining equity in social opportunity, healthcare, and access to diagnosis and therapies for…

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EJPRD is launching its Instagram!

To commemorate Rare Disease Day (February 28th), the European Joint Programme on Rare Diseases (EJP RD) is proud to announce the launch of their Instagram account and an exciting social media collaboration with #raredisease influencer Prof. Lara Bloom, President and CEO of the Ehlers-Danlos Society. On Rare Disease Day 2022, Prof.…

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