2019 Work Plan of the EU Health Programme

The document outlining the Third Programme for the Unionʼs action in the field of health (Work Programme for 2019) is now available to view here Many actions concern specifically the European Reference Networks: Rare disease registries for the European Reference Networks (2.1, pages 8-9, announcing a future call for proposals…

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VASCERN Spotlights: Claudia Crocione

This month we have the pleasure to feature Claudia Crocione, our ePAG Co-Chair for the Hereditary Haemorrhagic Telangiectasia (HHT) Working Group, in the VASCERN Spotlight. Claudia is the Managing Director of HHT Europe and she shares with us how she became involved with VASCERN and her experience so far, what…

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First VASCA-WG Patient Pathway now available!

The first patient pathway from the Vascular Anomalies Working Group (VASCA-WG) is now available! The first patient pathway to be published by the group is on Severe/Rare Infantile Hemangioma. Link to the Patient Pathway on Severe/Rare Infantile Hemangioma here You can equally find the patient pathway on the Patient Pathway…

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HHT WG Face to Face meeting in London

The Hereditary Haemorrhagic Telangiectasia Working Group (HHT-WG) held its 1st face to face meeting in the framework of VASCERN’s 3rd year of activities on the 8th of March, 2019 at Hammersmith Hospital in London, UK. It was hosted by Professor Claire Shovlin, Chair of the HHT-WG, and was attended by…

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