Recording of the VASCERN webinar: Pregnancy and PGD in Vascular Ehlers-Danlos Syndrome now available!

The VASCERN webinar Pregnancy and PGD in Vascular Ehlers-Danlos Syndrome took place on on Wednesday September 28th. This informative webinar was presented by Dr. Michael Frank, Cardiologist and Specialist in Vascular Medicine from AP-HP, Hôpital Européen Georges Pompidou in Paris, France. It was followed by a Q&A session for participants to ask questions. If…

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EuroThrombosis & EuroVessels 2022 scientific meeting

What a great way to end the month of October with its slew of conferences, seminars and scientific meetings discussing new research outcomes and improvements in patient treatment and care. The EuroThrombosis and EuroVessels 2022 (ETEV) meeting was held in Lisbon, Portugal from 20 – 22 October 2022. This conference was attended by Prof. Julie De…

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Everything You Wanted to Know About VASCERN Days 2022

On the 6th and 7th of October, 2022, VASCERN held its annual seminar in Paris, France. It was a great pleasure to welcome our members and invited stakeholders from EJP-RD, EURORDIS, Fondation AP-HP, AP-HP Hôpital Bichat, Orphanet, members of our VASCERN Registries Project team, and FAVA-Multi (The French Network for Rare Vascular Diseases)…

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Exchange Program Interview: Dr. Edit Nagy

In our VASCERN Exchange Program interview, we are thrilled to interview Dr. Edit Nagy from the Karolinska University Hospital in Stockholm, Sweden. Dr. Edit Nagy is a member of the Heritable Thoracic Aortic Disease Working Group (HTAD-WG). In this article, she shares what were her goals for the exchange program,…

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New Facilitation Window

Mentors and educators, experts in the field, are available online to answer your questions and to support you during your journey in this #EJPRD MOOC until December 3rd, 2022. Take the opportunity to interact with them! ℹ️ https://www.ejprarediseases.org/upcoming-update-on-mooc-diagnosis-rare-diseases-from-the-clinic-to-research-and-back/

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