A 2018 Overview Report on the State of the Art of Rare Disease Activities in Europe has been published by RD-Action, the recently-concluded European Joint Action for Rare Diseases.
This comprehensive report gives a complete overview of the past, current and future rare disease activities in Europe, as well as the political framework in the field of rare diseases around the world!
Read the full report here
RD-Action has played a pivotal role in supporting the implementation and evolution of ERNs. To learn more about the key outputs of this joint action relating to the ERNs you can visit the RD-Action’s Support to European Reference Networks (ERNs) page here.