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Home - News - Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks

October 05 2017

Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks

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Output of the RD-Action workshop on Data Standardisation, co-hosted by the European Commission (DG Sante) (April 2017)

RD-Action Report on Recommended Practices for Data Standardisation in the Context of the operation of European Reference Network

Read the report here

Recap of the Heritable Thoracic Aortic Diseases Spring Meeting

Recap of the Heritable Thoracic Aortic Diseases Spring Meeting

VASCERN Webinar Replay: Everything you wanted to know about vEDS

VASCERN Webinar Replay: Everything you wanted to know about vEDS

GenTAC Webinar: Genetic Testing - US and Europe Perspectives

GenTAC Webinar: Genetic Testing – US and Europe Perspectives

New Do's and Don'ts on CADASIL and Moyamoya Angiopathy: Download Now 2

New Do’s and Don’ts on CADASIL and Moyamoya Angiopathy: Download Now

A day of collaboration at the PPL Spring meeting 1

A day of collaboration at the PPL Spring meeting

A Recap of the MSA Spring Meeting 1

A Recap of the MSA Spring Meeting

A Recap of the MSA Spring Meeting

Highlights from the NEUROVASC-WG Spring Meeting 2023

New Pill of Knowledge from the Heritable Thoracic Aortic Diseases Working Group (HTAD-WG) 1

New Pill of Knowledge from the Heritable Thoracic Aortic Diseases Working Group (HTAD-WG)

Making a Difference on Rare Disease Day

Making a Difference on Rare Disease Day