In order to support the European Commission’s actions and to improve the management of rare diseases, Eurordis has launched the #Pledge4RD campaign to challenge Members of the European Parliament (MEP) to pledge their support for rare diseases before the upcoming European elections (May 23-36, 2019).
Their idea is simple: contact your returning MEP or a candidate MEP, have them download a #Pledge4RD sign and post a photo on social media using the hashtags #Pledge4RD, #EUelections2019 and tagging @eurordis to show their support for rare disease patients.
Rare diseases affect 30 million people in the EU so it is essential that MEPs continue to support a political framework that helps and strengthens the rare disease community.
Link to full article on the Eurordis website here
Link for further information here