08 June 2023
Advancing HHT Knowledge: Highlights from the HHT Based on Evidence European Meeting
Following an election process organised by Eurordis this summer, Juergen GRUNERT was appointed as the new Chair of the VASCERN European Patient Advocacy Group (ePAG). Juergen Grunert is already the ePAG Co-Chair for the MSA-WG and is equally Chairman of the Deutsche Ehlers-Danlos-Initiative e.V., the oldest patient organization in Germany. We thank him for his continued dedication and commitment.
VASCERN’s 5 ePAG Co-Chairs (1 per Rare Disease Working Group) are:
Finally, a new official logo for the 24 ePAGs linked to the European Reference Networks has been developed by Eurordis in cooperation with the European Commission: