ERNs Clinical Patient Management System

A training version of the Clinical Patient Management System for European Reference Networks on Rare Diseases has been released by the European Commission in July. This training version is currently tested by the ERNs.

VASCERN News

Insights on the ERN 5-year Evaluation of VASCERN and its HCPs

08 December 2023

Insights on the European Reference Network (ERN) 5-year Evaluation of VASCERN and its HCPs

VASCERN News

24 November 2023

Vascular Anomalies (VASCA-WG) CPMS case discussions continue

VASCERN News

21 November 2023

Countdown to Rare Disease Day 2024

VASCERN News

15 November 2023

Deadline Extended: Apply Now for the 1st Edition of VASCERN Summer School on Rare Vascular Diseases

EU calls

The Rare disease community unites in an open letter for continued support of European Reference Networks

10 November 2023

European Commission Calls for Patient Organization Representatives in EMA’s Committee for Orphan Medicinal Products

Research News

08 November 2023

Exciting Interim Results from Phase III Trial VASE: Sirolimus Shows Promise in Managing Vascular Malformations

VASCERN News

06 November 2023

New ERN Information Brochure for 2023

Research News

06 November 2023

New Research Unveils the Complex Role of TGFβ Signaling in Thoracic Aortic Aneurysm and Dissection

VASCERN News

20 October 2023

Discover Our New Heritable Thoracic Aortic Diseases E-Learning Course