Newsletter #22 - September 2018

Newsletter #24 - November 2018

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image VASCERN Spotlights: Dr. Robert Damstra

VASCERN Spotlights: Dr. Robert Damstra  What is great about the ERNs is that they have given increased recognition to the field of rare diseases. For a very long time it…

image Professor Miikka Vikkula wins First Generet Award!

We would like to congratulate Professor Miikka Vikkula, our Vascular Anomalies Working Group (VASCA-WG) Chair, for being awarded the first Generet Award, with a prize of €500,000 for research into…

image Do’s and Don’ts Factsheets for Pediatric and Primary Lymphedema available!

A new chapter has just been added to VASCERN Do’s and Don’ts Factsheets for Rare Vascular Disease Patients Facing Frequent Situations: the Pediatric and Primary Lymphedema Working Group (PPL-WG) have now completed…

image New #EUProtects video featuring the ERNs!

The European Commission's EU Protects campaign (#EUProtects) aims to raise awareness of the various ways in which the EU combats global challenges to protect its citizens and their latest video…

image 4th Conference on European Reference Networks

The 4th Conference on European Reference Networks for rare diseases (ERNs) took place on November 21-22, 2018 in Brussels, Belgium. To read the official summary report from the European Commission,…

image New ERN Information Video and Flyer for patients and healthcare professionals!

The European Commission has just released a new flyer and video about the European Reference Networks aimed at informing patients and healthcare professionals about how the ERNs work. It introduces…

image VASCERN Days 2018: Highlights from our 2nd Annual Seminar!

VASCERN's second annual seminar, VASCERN Days 2018, took place on October 11-12th, 2018 in Paris, France! In attendance were 70 healthcare professionals from all of our 31 Healthcare Provider Members as well as European Patient Advocacy…

Up-coming events

EU calls

  • Thu

    A preliminary announcement on the first Joint Call for Proposals of the European Joint Programme on Rare Diseases (EJP RD): "Transnational research projects to accelerate diagnosis and/or explore disease progression and mechanisms of rare diseases” has been released!

    The official call is scheduled to open on December 14, 2018, with the indicative deadline for submitting the pre-proposals being foreseen for February 14, 2019

    To read all about the upcoming call click here

    The ERA-Net E-Rare has successfully implemented ten Joint Transnational Calls for rare disease research projects since 2006. This effort is now continued in the frame of the European Joint Programme on Rare Diseases (EJP RD) that has been established to further help in coordinating the research efforts of European, Associated and non-European countries in the field of rare diseases and implement the objectives of the International Rare Disease Research Consortium (IRDiRC).