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image VASCERN Meetings

VASCERN five Rare Diseases Working Groups (Hereditary Haemorrhagic Telangiectasia (HHT-WG), Heritable Thoracic Aortic Diseases (HTAD-WG), Medium Sized Arteries (vascular Ehlers Danlos Syndrome) (MSA-WG), Pediatric and Primary Lymphedema (PPL-WG), Vascular Anomalies (VASCA-WG)…

image VASCA-WG new scientific publication

A novel blood vessel disorder and its genetic cause discovered Researchers in the group of Prof M. Vikkula of the de Duve Institute in close collaboration with the Vascular Anomalies…

image EU Consultation on eHealth

The European Commission has launched a open consultation on digital transformation of health and care. Cross-border access to and management of personal health data; A joint European exploitation of resources…

List of National Contact Points for Cross-Border Healthcare

List of National Contact Points for Cross-Border Healthcare

image ERNs new videos

The European Commission has released four new video testimonials from rare diseases patients, explaining how European Reference Networks for Rare Diseases help them. More info here Watch the videos here

image ERNs Clinical Patient Management System

A training version of the Clinical Patient Management System for European Reference Networks on Rare Diseases has been released by the European Commission in July. This training version is currently…

image VASCERN ePAG meeting in Budapest

During the EURORDIS Membership Meeting in Budapest on May 19 - 20, some of our VASCERN ePAG (European Patient Advocacy Group) representatives had the opportunity to meet, and to share with all ePAG groups…

image Report of the ERN launch in Vilnius

The report of the European Reference Networks launch Conference, held in Vilnius on March 9-10th has been published. Read the report here

image eHealth Call for ERNs

The European Commission (INEA Agency) has launched a Connecting Europe Facility (CEF) Telecom Call on eHealth for European Reference Networks on May 6th. This call for ERNs aims to facilitate…

image Members Area available!

VASCERN Members are invited to create a EU login and access the VASCERN Collaborative IT Platform here !

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